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•• Absence Seizures •• Absence seizures, sometimes referred to as “petit mal” seizures, are another common type of seizure experienced by children with CLN1. According to our survey data, 57% of the CLN1 population has them. Absence seizures are generalized seizures, meaning they affect both sides of the brain at the same time. They cause brief, sudden lapses in awareness, often with episodes of staring blankly. Because of this presentation, absence seizures are often mistaken as a child daydrea
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•• Absence Seizures •• Absence seizures, sometimes referred to as “petit mal” seizures, are another common type of seizure experienced by children with CLN1. According to our survey data, 57% of the CLN1 population has them. Absence seizures are generalized seizures, meaning they affect both sides of the brain at the same time. They cause brief, sudden lapses in awareness, often with episodes of staring blankly. Because of this presentation, absence seizures are often mistaken as a child daydrea
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Casey had a seizure yesterday that lasted over 5 minutes and I didn’t even know it until I see a heart rate spike in his Cardiogram app today. I was across the room from him (you can see me rocking in the reflection of a picture on the wall past him) and never knew it happened. Thankfully these don’t cause the postictal Todd’s paralysis but that means there was nothing to indicate to me that it had happened. An absence seizure is a staring spell, lasting less than a minute, that is usually notic
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